Gui, 8 years old, suffering from dystrophic epidermolysis bullosa, was in a coma due to pneumonia and was visited by the Vasco da Gama players
Video showing a mother reuniting with her eight-year-old son after he spent 16 days in with the has gone viral on social networks such as TikTok and Instagram in recent days. The case occurred in a hospital in Rio de Janeiro and was shared by Tayane Gandramother of guiyoung man who has a rare disease call dystrophic epidermolysis bullosa.
Original sound by @tayanegandra – Tayane Gandra
The period in induced coma was necessary for the treatment of pneumonia. to the newspaper The globethe mother specified that the doctors evaluated the possibility of performing a tracheostomy on the boy, which in the end proved unnecessary.
Faced with the repercussions of the video and the fact that the boy was a Vasco da Gama fan, players Figueiredo and Gabriel Pec went to the hospital to visit him. As well as an autographed shirt, he has also received an invitation to visit the São Januário stadium and join the pitch with the athletes when he is better.
The streamer Rodrigo Dinamite, son of the historic striker (and former president) of Vasco da Gama Roberto Dinamite also passed into the room where Gui is hospitalized.
Original sound by @tayanegandra – Tayane Gandra
“I heard about his story and was very moved by the video that went viral. I hope you keep recovering and soon you can be on the field with me. Thanks for the love. May God continue to bless you, little one. You are light ‘As long as there is an infantile heart, Vasco will be immortal,'” said Pec.
What is dystrophic epidermolysis bullosa?
According to information from the Ministry of Health, it is a rare, incurable and non-communicable disease. Genetic and hereditary, it affects only about 500,000 people worldwide today. In Brazil there are about 800 diagnosed patients.
There are different types of epidermolysis bullosa, but epidermolysis dystrophic (EBD), which affects Gui, is the one that causes the greatest number of sequelae, with the formation of deep blisters between the dermis and epidermis, generating scars and in some cases also loss of function of the members.
“butterfly disease”
Dystrophic epidermolysis bullosa is also known as “butterfly disease”, as the fragility of the patient’s skin is similar to that of an insect’s wing. In 2022 the Stadium interviewed psychologist Tauani Vieira, who was diagnosed as a newborn. “It’s like I don’t have this ‘glue’ that keeps the epidermis attached to the dermis, so any trauma causes my skin to break down,” she explained.
“For 21 years I hid, everywhere, to spare others and to spare myself their reaction, which was sometimes curiosity, sometimes fear and many times disgust. […] I have a lot of open wounds that cause blisters and I have to protect those spots with non-stick dressings because the glue from the plaster will break my skin,” she continued.
Dystrophic epidermolysis bullosa was also the subject of an episode of the series To live is rare, available on Globoplay. in it, the teenager Theo Colker shows the strength to live with the fragility of his own skin, facing the disease in his daily life, but also playing video games, practicing karate, having fun with his friends.
Check out more videos below showcasing Gui’s encounter with Vasco’s personalities:
Source: Terra
Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.
