Subject reverberated after the viral reunification video between mother and son with epidermolysis bullosa. Understand the term “butterfly skin”
Guilherme, 8, moved to the country when he awoke after 16 days in a coma to find his mother, Tayane Gandra. The record went viral on social media and brought attention to an extremely rare disease: the epidermolysis bullosa.
It is an autoimmune genetic condition that causes severe damage to the skin. She it is not contagious and has no cure. However, according to the Ministry of Health, only four out of a million babies are born with these lesions.
What is epidermolysis bullosa
According to dermatologist Gustavo Martins, the skin of patients with epidermolysis bullosa has a deficiency in the production of the binding protein, collagen type VII.
“This protein is responsible for bonding the dermis to the epidermis, and its absence results in extremely fragile and sensitive skin. Simple friction or pressure on the skin can cause painful blisters and wounds to form,” says the expert.
Because they are fragile and delicate, doctors compare epidermolysis bullosa patients to the wings of a butterfly, hence the disease’s nickname.
How to treat the condition
The dermatologist explains that to prevent and minimize the symptoms it is necessary to adopt a series of precautions. The use of immunobiologic drugs can help stabilize the condition, but unfortunately, there is still no definitive cure.
“In addition, it is essential to avoid trauma to the skin, such as rubbing, impact or excessive pressure. It is recommended to avoid tight clothes, uncomfortable shoes and synthetic fabrics, which can damage delicate skin,” emphasizes the professional .
The disease usually manifests itself from birth or in childhood, which requires constant care and specialized medical follow-up.
“Besides the physical challenges, the condition can also have a significant emotional impact. Therefore, it is essential to offer adequate care to ensure the patient’s psychosocial development,” emphasizes Gustavo.
Source: Terra
Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.
