Rare Disease Causes Skin Burns, Affects Singer’s Wife

Stevens-Johnson syndrome (SJS) is a rare but serious disease that affects the skin and mucous membranes. It is considered a more severe form of toxic epidermal necrolysis (TEN).

The condition is usually triggered by an adverse reaction to medications, although it can also be caused by viral infections.

Initial symptoms may be flu-like and include fever, sore throat, muscle aches, and fatigue.

SJS is characterized by the sudden onset of severe rashes, blisters, and peeling skin.

Some patients may also experience a burning sensation in the eyes, similar to conjunctivitis.

As the disease progresses, blisters may form on the skin and may spread to affect the mucous membranes of the mouth, nose, eyes, and even the genitals.

The drugs most commonly associated with SJS include some antibiotics, anticonvulsants, nonsteroidal anti-inflammatory drugs (NSAIDs), and antiretrovirals used to treat HIV.

The profiles of people most at risk of contracting SJS are those who have already had a condition after taking certain medications; those who have a weakened immune system or those who have a close relative who has already developed the disease.

Treatment involves discontinuation of the offending drug, supportive care to relieve symptoms, such as adequate hydration, pain control, and prevention of infection.

According to the NHS, the British health service, the syndrome must be treated in hospital, usually in an intensive care unit.

Another measure that can relieve symptoms is the administration of intravenous fluids to prevent dehydration.

It is also recommended to apply creams and dressings to moisturize and protect the skin.

It is worth noting that SJS is a rare but potentially fatal condition. It is essential to seek immediate medical attention for proper diagnosis and treatment.

In July 2023, Caroline Aguiar, ex-wife of singer Frank Aguiar, spent ten days in a hospital’s intensive care unit being treated for Stevens-Johnson syndrome.

Through his social media, he said he was having difficulty walking, eating and even urinating.

She posted photos showing red, scaly sores on her neck, face, mouth, back and chest.

“My mouth was all sore. I lost 15 pounds and I remember it took me an hour to introduce liquid food,” she said.

“I thought I was going to die. I even made a video to say goodbye, I swear I thought I was going to die. And God gave me another chance,” Caroline continued.

On the occasion, she also thanked her ex-husband and singer for being by her side and posted a photo of Frank Aguiar in the hospital.

In February 2024, Caroline announced that her five-year relationship with the singer had come to an end.

“My loves, my marriage to Frank is over, yes! Life goes on! I ask you to respect this moment, that’s it. May God protect us,” she said.