The services also reduce the impact of drugs and offer what experts call a “flowery” opportunity.
A serious illness causes more than just physical symptoms. The diagnosis raises reflections on finiteness, and fear and anguish emerge as hope fades. In this sense, palliative care can alleviate pain and suffering, claiming the possibility of a new human and sensitive perspective. The building called “bloom”.
or palliative care It is a form of care focused on treating and preventing suffering for people living with life-threatening diseases. You can benefit from this cure cancer patients o with heart, lung, kidney, liver, neurodegenerative, dementia and HIV. Patients with repeated hospitalizations, with permanent sequelae or in which it is perceived the impossibility of treatment can also begin treatment. During the coronavirus pandemic, the World Health Organization (WHO) still recommended the approach to caring for patients with covid-19.
Palliative care includes professionals from different specialties for better symptom control and quality of life. The multidisciplinary teams are composed of doctors, psychologists, physiotherapists, nutritionists, occupational therapists, speech therapists, professionals for spiritual support, among others. “If I don’t have a team to take care of this patient other than the physical symptoms, I can’t do my job,” explains cancer surgeon Tereza Cristina Reis, who was director of Inca IV, a hospital unit specializing in palliative care.
According to Tereza, assessments made by palliative care professionals go beyond physical symptoms. This type of care takes a holistic view and brings the wishes of the patient and their family into the decision-making process regarding treatments. “He needs to figure out if this makes sense to him. I think participating in decision making is the most humane way we have to deal with it,” she says.
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National Academy of Palliative Care (ANCP) president Douglas Crispim reiterates that palliative care aims to alleviate physical, psychological, family, social and spiritual suffering. “There are ways to diagnose the different types of suffering. If the main suffering is psychological, it will have a main approach from the psychologist. But normally, at first, the patient has many physical symptoms, with pain and shortness of breath. , the first approach ends up being the doctor “.
As for spiritual approaches, he argues that the sacred individual is respected. “The idea is to understand the sacredness of each one in order to be able, through empathy, to offer the appropriate type of assistance. Therefore, the palliative care practitioner must have a specific knowledge of the different religions and manifestations of spirituality” , in shape.
Who is familiar with the effects of palliative care is physical education teacher Maria Laisa Sampaio, 57, who discovered metastatic cervical cancer in 2012. She started treatment with chemotherapy, but two years after the end of her cycle. , Maria Laisa found that the cancer had returned, with lung metastases. “I didn’t want to do chemotherapy again, because of the side effects. I told the doctor it wouldn’t be worth it and I wouldn’t have the treatment anymore,” she says.
With the change of oncologist, Maria Laisa had her first contact with palliative care. To bring more comfort during chemotherapy, her new doctor suggested home care. “The disease control treatment at the clinic I was in involved a nutritionist, a psychologist and the entire interdisciplinary team. However, in the clinic, the word ‘palliative’ did not exist,” she recalls.
It was in 2020 that she discovered she was a palliative patient, through Palliative house. Thus, he began to take action to demystify the issue and implement measures that added improvements to the treatment of patients. “My goal is to break this taboo that palliative patients are already dying. Palliative patients are not terminal patients, palliative patients need quality of life and autonomy,” she says.
Currently, Maria Laisa shares her knowledge about palliative care with her 26,400 followers on Instagram. in the account @vidaavivida, reveals his participation in lives and chats about health and quality of life. In his funny posts about her, where she appears dancing around the world, she reinforces the importance of living today.
Palliative house
In San Paolo, Casa Palziale is a space of coexistence, physical and virtual, dedicated to patients with serious illnesses who can benefit from this environment. Activities are carried out that include dialogue, active listening, well-being, quality of life, belonging, information and professional advice.
Chamber coordinator Ana Michelle Soares, 39, has been dealing with metastatic breast cancer since 2011. She has been using palliative care for seven years. “I started at the stage where the cure could still be considered. But the treatment failed for me and the cancer returned after three years,” she says. By strengthening the links with palliative care, Ana Michelle has decided to help other people living in situations similar to hers.
The coordinator stresses that the goals of palliative care are not healing, but life maintenance. Thus, parallel to conventional treatments, Ana Michelle began palliative care. “The treatments help me to live better with the treatments, with all the atomic bombs we take. So it’s a marriage that, for me, is perfect. And I started fighting for it,” she explains.
Death
According to the coordinator, about 2,000 people are accompanied by the Palliative Home, including patients and family members. The dynamics also permeate sensitive subjects, to stimulate conversation and understanding. “We realize it’s hard to talk about death. It can upset the family. But not talking about it suffocates, because it seems like people aren’t on the same line or look at you and don’t see you in your reality,” says Ana. Michelle.
The process of understanding the lived moment is called “flowering” by the coordinator. “It’s so nice to see how they learn to position themselves to say, ‘I’m not going to heal, but I want to live the best I can.’ It is a great liberation. “
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Source: Terra
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