The list also contains the list of several vaccines that have been discarded during the administration of the former president.
During the administration of Jair Bolsonaro (PL), the government lost and had to incinerate expensive medicines, used in rare diseases with deadly potential, valued at least BRL 13.5 millionaccording to a newspaper article Folha de São Paulo this Thursday the 16th.
The data, obtained from the Access to Information Act, details the extent of the damage. One of the items on the list is the drug Spinraza, for the treatment of patients with AME (spinal muscular atrophy), the dose of which was purchased by the government for BRL 160 thousand. The treatment is one of the most expensive out there.
Additionally, the listing also reveals that 949 units of Translarna, used in patients with Duchenne muscular dystrophy, were rejected. Discarding doses caused loss of BRL 2.74 million in total.
Different drugs used in patients with cases of mucopolysaccharidosis, evaluated in BRL 2.9 million.
vaccines
The list also features a list of several vaccines that had to be discarded during the former president’s administration, such as 39 million covid-19 vaccines that were incinerated because they expired.
Also on the list are measles and rubella, pentavalent, hepatitis, and triple viral immunizers.
Tests and other drugs for patients with cancer, hepatitis C and HIV are also on the list.
defences
The Ministry of Health of the government of Luiz Inácio Lula da Silva (PT) commented on the complaint and said that “the waste scenario reflects the carelessness of the previous government”. Also according to the file, the Bolsonaro government has not shared this information with the current leadership and which, currently, seeks to adjust these stocks and seek solutions with states and municipalities to avoid further losses.
Marcelo Queiroga, who was Minister of Health between March 2021 and December 2022 in the Bolsonaro government, said that this information is under the care of the technical areas. Luiz Henrique Mandetta, who held the position until April 2020, reclaimed the portfolio effort to manage the title while he was in place. Mandetta added that, in the case of vaccines, their use also depends on the adhesion of the population.
Another former Bolsonaro health minister, Eduardo Pazuello – who served from June 2020 to March 2021 – declined to comment.
List of high-cost drugs that have been lost
to translate
Treatment: Duchenne muscular dystrophy
Incinerated units: 949
Amount: 2.74 million reais
betagalsidase
Treatment: Fabry disease
Incinerated units: 259
Amount: 2.46 million reais
Eculizumab
Treatment: paroxysmal nocturnal hemoglobinuria
Incinerated units: 127
Amount: 1.73 million reais
Vimizim
Treatment: IVA mucopolysaccharidosis
Units incinerated: 632
Amount: 1.61 million reais
galsulfase
Treatment: mucopolysaccharidosis VI
Incinerated units: 283
Value: BRL 1.24 million
Alfagalsidase
Treatment: Fabry disease
Incinerated units: 272
Value: 1 million BRL
Metreleptin
Treatment: Berardinelli-Seip syndrome
Incinerated units: 47
Amount: 1.1 million reais
idursulfase
Treatment: Huner syndrome
Incinerated units: 186
Value: BRL 985 thousand
Nusinersen (Spinraza)
Treatment: Spinal Muscular Atrophy (SMA)
Incinerated Units: 2
Value: BRL 319 thousand
Nitisinone
Treatment: Hereditary tyrosinemia type 1
Incinerated units: 1,200
Value: BRL 229 thousand
Alemtuzumab
Treatment: multiple sclerosis
Incinerated Units: 2
Value: BRL 56 thousand
Kanuma
Treatment: Acid lipase deficiency
Units incinerated: 1
Value: BRL 23 thousand
Total: BRL 13.5 million
Source: Terra

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