The family was entitled to receive R $ 7.3 million to buy the medicine, but the amount was deposited just one day before his death
Little Vinícius de Brito Samsel died at the age of three, earlier this Wednesday, 15. The information was released by the family on social networks. The child, who lived in Paraná, suffered from spinal muscular atrophy (MEA) and was waiting for the most expensive medicine in the world, Zolgensma.
The family started a legal battle to be able to buy the medicine for the child in 2021. After being denied the supply of the medicine by the Paraná Justice, the lawyer Graziela Costa Leite, who represents them, filed an appeal with the Federal Supreme Court ( STF).
In December 2022, the STF condemned the state of Paraná and the Union to grant the drug. The family even celebrated the decision on social media. However, the deposit of 7.3 million reais for the purchase of the drug only took place on Tuesday the 14th, a few hours before the boy’s death.
Vinícius was admitted to the Santa Casa de Misericórdia de Campo Mourão hospital on Tuesday evening, after presenting low saturation and irregular heartbeats, according to the family posted on social networks. He was even sent to the intensive care unit (ICU) and intubated, but he couldn’t resist.
“Vinicius de Brito Samsel died at the age of three, in Santa Casa de Campo Mourão. Even faced with a battle to raise funds to buy the most expensive medicine in the world, he had no chance and no time for treatment. And , from an irony of life, after winning the right to medicine in court since December, the union has been very resistant in complying with the decision of the Stf. Yesterday the union paid the deposit into a judicial account of the lawyer Graziela.
The boy’s body was veiled this Wednesday 15. On social networks, the mother mourned the death of her son. “Unfortunately, our boy couldn’t resist and left for the arms of God. You fought until the last second child. It all went so fast that we still can’t believe that you will no longer be among us, how it hurts”, she published.
OR Earth he applied to the Government of Paraná and the Ministry of Health for a position, but did not receive a response until the last update of this report.
Source: Terra
Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.
