The boy with a rare disease that went viral after being reunited with his mother is discharged and returns home; I wait

Gui, 8, has dystrophic epidermolysis bullosa and was in a coma from pneumonia; he was received with a party and posters from the neighbors this tuesday 27

The small guian 8-year-old boy who went viral on social media with a video showing him reuniting with his mother after being in a coma, had discharged from the hospital and returned home on Tuesday the 27th.

He suffers from dystrophic epidermolysis bullosa, a rare and incurable skin disease, and had been in a coma for 16 days in a hospital in Rio de Janeiro due to pneumonia.

Information about the discharge was disclosed by the mother, Tayane Gandrathrough social networks. She shared records of friends and neighbors who received the baby with a party at the door of her home in the city of Itaguaí, in the Rio metropolitan region.

Gui was escorted by agents of the Federal Traffic Police (PRF) during his return home. Upon arriving at the site, he was met with welcome signs, cheers and reporters waiting for him.

remember the case

The record of the reunion between Gui and Tayane went viral on social networks such as TikTok and Instagram after the boy spent 16 days in an induced coma due to treatment for pneumonia. Watch the video:

Original sound by @tayanegandra – Tayane Gandra

Faced with the repercussions of the video and the fact that the boy was a Vasco da Gama fan, players Figueiredo and Gabriel Pec went to the hospital to visit him.

Original sound by @tayanegandra – Tayane Gandra

As well as an autographed shirt, he has also received an invitation to visit the São Januário stadium and join the pitch when he is better.

The streamer Rodrigo Dinamite, son of the historic striker (and former president) of Vasco Roberto Dinamite also passed from the room where Gui was hospitalized.

View this post on Instagram

A post shared by Tayane Gandra (@tayanegandra)

What is dystrophic epidermolysis bullosa?

According to information from the Ministry of Health, dystrophic epidermolysis bullosa is a rare, incurable and non-communicable disease. Genetic and hereditary, it affects only about 500,000 people worldwide today. In Brazil there are about 800 diagnosed patients.

There are different types of epidermolysis bullosa, but epidermolysis dystrophic (EBD), which affects Gui, is the one that causes the greatest number of sequelae, with the formation of deep blisters between the dermis and epidermis, generating scars and in some cases also loss of function of the members.

“butterfly disease”

Dystrophic epidermolysis bullosa is also known as “butterfly disease”, as the fragility of the patient’s skin is similar to that of an insect’s wing. In 2022 the Stadium interviewed the psychologist Tauani Vieira, diagnosed as a newborn. “It’s like I don’t have this ‘glue’ that keeps the epidermis attached to the dermis, so any trauma causes my skin to break down,” she explained.

Source: Terra

Ben

Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.