Tuberous sclerosis, a degenerative disease that causes benign tumors in various organs, requires a follow -up regular doctor and specific treatments
The actress Nice kutnerKnown for its performance in different soap opera and shows, she lives an intense routine dedicated to child care, David Kutnerwhich has a rare disease, tuberous sclerosis, as well as autism and difficult to control epilepsy. The actress openly shares the challenges and learning of this journey, inspiring many families who face similar situations.
David, the result of Bel’s relationship with the musician Fábio MondegoIt requires constant attention and special care. Tuberous sclerosis, a degenerative disease that causes benign tumors in various organs, requires a follow -up regular doctor and specific treatments.
In an interview with the website that the actress says that the diagnosis came when she was still a child. “David will be 20 years old in September, so I already live with tuberous sclerosis, autism and epilepsy and all this universe of rare diseases for a long time. It was a diagnosis made very early. And I quickly surrounded myself with professionals and started doing my best so that David had a better quality of life and developing in the best possible way“He said.
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Bel Kutner’s care with his son
The actress revealed that David can have a routine without many crises due to the treatment with Cannabidiolo (CBD). Nice says that the drug made a big difference in the life of the child. “Not only has it reduced the amount of anticonvulsant that will have to take for the rest of his life, but has also reduced the side effects of the drugs. It is a medicine that has been of great support“.
In the end, the actress spoke of the routine of her son and what she likes most. “Watch the film, to exchange idea, to walk, love bush and nature. But precisely because of these social phobias that has developed in recent years, in adolescence, it is more difficult to be with him in places with others because it comes into crisis. But when I can be with him in some places with space and nature, I will always do it“He said.
The actress was dedicated to projects that aim to give visibility to issues related to rare diseases and inclusions, such as videocast “Free access“By Bandnews FM Rio. He turns to topics such as accessibility and inclusive education. Furthermore, he uses his voice and experience to make society aware and defend the rights of people with disabilities.
Source: Terra
Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.
