After the children are diagnosed with a rare disease, the parents decide to travel to help them build visual memories.
After discovering that three of her four children have a rare genetic disease called retinitis pigmentosa, which leads to blindness, the Canadian couple Edith Lemay and Sebastien Pelletier decided to go out into the world with the little ones. The purpose of the trips is moving: to help them form the as much visual memory as possible before they lose their sight.
The journey, which began in March and should last a year, began in Namibia, an African country where the family was able to see large animals, not just virtual images. The idea came from the first diagnosis, which was that of Mia (12), the eldest daughter; then came Colin (7) and Laurent (5). Of the four siblings, only Leo (9) does not have the disease.
in search of memories
The plan was to take a trip in 2020, but the pandemic delayed departure. So far, the adventurers have been to Turkey, Tanzania, Zambia and Mongolia and have shared records a Facebook page. In the latest update, the group was heading for the beaches of Indonesia.
In an interview with the Canadian channel CTV Newsthe mother said that, in addition to forming these visual recordings that the children will carry with them throughout their lives, the experience still strengthens family ties and brings important lessons children, how to deal with adversities that arise along the way.
“Traveling, yes, it is beautiful. We see beautiful things, but it is also often very difficult. We can be hungry, tired, frustrated and have difficult situations. So we want them to learn to look at the solution, to see the bright side.” Edith reported. .
The medical community still does not have clear information on the disease, which for now there is no treatment, so it is not known how long children will lose their sight. Therefore, the parents have urgency to show the beauty of the world to the little onesso they can keep it forever in their memory.
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Source: Terra
Benjamin Smith is a fashion journalist and author at Gossipify, known for his coverage of the latest fashion trends and industry insights. He writes about clothing, shoes, accessories, and runway shows, providing in-depth analysis and unique perspectives. He’s respected for his ability to spot emerging designers and trends, and for providing practical fashion advice to readers.
