The young woman made herself known on TikTok, where she reached 2.4 million followers; “Despite all the suffering, she managed to leave a beautiful legacy,” the family said in a statement.
“It’s been 31 years of suffering from EB [Epidermólise Bolhosa] imposed on her, but, despite all the suffering, she managed to courageously leave a beautiful legacy, she taught many the true meaning of life, love, strength and above all faith. Gratitude to God for allowing us to live with someone so special,” the statement read.
What is Epidermolysis Bullosa
According to the information reported on the website of the Ministry of Health, “Epidermolysis bullosa is a rare genetic and hereditary disease, which causes the formation of blisters on the skin due to minimal friction or trauma and manifests itself at birth. Children affected by epidermolysis bullosa are known as “Butterfly Children”, because the skin resembles the wings of a butterfly due to the fragility caused by the change in proteins responsible for bringing the skin layers together.”
It is estimated that 500,000 people on the planet suffer from this disease, of which 802 are in Brazil. The disease has no cure and is also not transmissible. to learn more about the disease.
@daicruzoficial
#dance #dance #juntossomosmaisfortes #jequiebahia #tiktok
Bruna Emilly – emillyzinha
@daicruzoficial
#epidermolisibullosa #jequiébahiabrasil #tiktok #danca
original sound – Dai Cruz Official
@daicruzoficial
#dance #dancinhatiktok #epidermolisebolhosa #zefelipecantorvirginia #doençadepele
original sound – Dai Cruz Official
Source: Terra
I am Amanda Gans, a motivated and ambitious professional in the news writing industry. With over five years of experience in this field, I have developed an eye for detail and an ability to craft stories that captivate readers. I currently write for Gossipify, where I specialize in beauty & celebrities news. My passion lies with exploring the world of beauty through writing, interviewing experts and developing articles that are both informative and entertaining.
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