The ICU team takes fans with diagnosis of rare diseases to enjoy the live show

The ICU team takes fans with diagnosis of rare diseases to enjoy the live show


According to the family members of Tatiane Barros, 45, this was the first time in over 100 days, he left the hospital


Summary

Hospital of 168 days ago with a rare disease, Tatiane Barros was brought by the ICU team of the Star hospital to a live pagoda show, providing a moment of joy and humanization that enthusiastically the family and professionals.




Hospital 168 days ago, Tatiane Barros45, he received a surprise last Sunday, 8 Enjoy a Pagoda show, the patient’s favorite musical genre.

In Barros he was diagnosed PorphyryA rare genetic disease after bariatric surgery. According to Antonio Aurélio Fagundes Júnior, a general coordinator of uni-general use, the condition affects the emoglobin and red cell metabolism (red cells)-drives the accumulation of toxins in the body, generating a neurotoxicity that can lead to a touch of a titoplegia, which is a condition of tatane.

In an attempt to recover the Board of Directors, the Coordinator of Human Resources He was hospitalized since December 22nd. As part of the patient’s humanization process in the intensive care unit (ICU) there is a long time, the team has put into practice an internal action called “What Matters to you”.

“She is in love with Pagoda, so we organized a birthday party for her, bringing a group of pagoda to the hospital to sing them. We also led her puppy to spend a day with her. With all the satisfied security protocols. And now, for months, we have planned this [nova] action, which was truly a desire to“Says Fagundes.

For the moment of working, the team has identified an open place, so that it had no risk of transmission or contamination of infections. With the support of the owner of the owner of the space, an infrastructure with ambulance, oxygen, electricity, support fans was created.

We literally created an icu in the pagoda and was a memorable night for her and for all of us. We could live this experience with her and fulfill her desire, “the professional celebrated.

The show took place in Parque from Cidade. In addition to the medical team, Tatiane’s family and friends could also experience the experience with her. It was applauded by the band and the public and sang the songs. I wait:

“For us in the family, it happened that he warmed our hearts, because it came from a very difficult week and sees his joy is extraordinary. He renewed his energies, because he was not motivated. He knows only how to thank this moment. Everything was perfect,” said Tatiane, Andreia Sores, in an interview with an interview Earth.

According to her, Tatiane is a pagoda of the cream and, when she learned that she could go to the show, she was radiant. “It was the doctor himself who gave the news. […] It was just a smile. When someone came to bed, he already said the news, “he said.

“This type of action helps a lot in the recovery of the patient, both from a psychological point of view, gives it an energy, in this struggle for life and from an immunological point of view, in which you are less susceptible to infections. So joy, fun, relieving moments of stress and tension and this is what we wanted to provide. It is therapeutic in many ways.

Cost support

Tatiane’s family created a virtual kitten to raise funds to continue her treatment. According to Andréia, the sister has a health plan, however, some exams are not covered.

“It is far from work, so the help is to pay the plan, with diapers, vegetables, prostheses and its personal objects. We need and everything is very expensive,” says Soares.

To help, the family reveals the photo: (61) 99251-0187In the name of Tatiane Barros. According to her, there is no objective of values, as there is no prediction of discharge.



Tatiane next to the sisters (left) and the intensive care team (right)

Source: Terra

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