Musiceddie Vedder draws attention to rare disease in a new documentary ‘as you approach this community and you understand your reality, there is no way to ignore how difficult the challenges faced by these families,’ says Pearl Jam vocalist in an exclusive stretch of Matter of TimePor

Eddie Vedder and your wife, Jillthey explain why they became so deeply involved with the community affected by the bullous epiderolysis (EB) in an exclusive stretch of MATTER OF TIMEnew documentary about the vocalist of Pearl Jam and their efforts to raise funds and make the public aware of this rare genetic disease.

In the video, Jill Vedder He says he met EB when the son of a couple of friends was diagnosed with the disease. “We thought, ‘This is the most insane, brutal and intense thing we’ve ever seen’, and what can we do?” He recalls.

“’Okay, maybe we can talk about it, start small and see what gives’. I see people on the street or when I go to the band shows, and always have an amazing fan of Pearl Jam That comes to me and says, ‘My God, I love what you are doing for the children with EB’. ”

MATTER OF TIMEwhich debuts at the Tribeca Film Festival, has as its background the charity show that Vedder He performed in Seattle in 2023 to raise funds for the cause, and presents personal stories of parents and young patients affected by the disease.

“The closer you approach this community and the more you understand your reality, you can’t escape the difficulty of the challenges these families face,” he says Eddie Vedder In the stretch.

We have already had to overcome some obstacles that are examples of why it is still possible to have faith and hope – but the most complicated is to have patience. ”

Eddie Continues: “If you raise funds and increase awareness you can feed this process, and the scientific side of finding a cure and applying it, so it seems to be just a matter of time.” The film takes the same name as the song “Matter of Time”launched by Vedder In 2020 as a tribute to “all in the world affected by EB”.

In addition to music Eddie Vedder, MATTER OF TIME, directed by Matt Finlin and with executive production of Jill Vedder, also has an original soundtrack signed by the Canadian band Broken Social Scene. “The presence of Eddie It is in each picture, even when it does not appear physically. Your leadership, your love for Jill And their dedication to the community with EB, their unwavering belief that this disease can be healed, all shaped the spirit of this movie, ”he said Finlin the Rolling Stone.

Not only raises funds; He inspires purpose. It makes the world stop to hear, and then act. I think the true measure of the influence of Eddie It’s not just what you see on the screen, but what you feel after watching: that we are all part of it, that we need to be part of it. ”

“This is a story about a rare disease, but more than that, it’s a story about a rare community,” he adds Finlin. “A group of people who have decided that this is not just about surviving, these are treatments, healing. It’s about daring, going further. And they support that hope with action.”

“Michael HundCEO of EB Research Partnership, has a great phrase in the movie: ‘All of us, in this community that we have the deep honor of serving those facing EB, we have a duty to offer something they can march, something that illuminates a final goal’. MATTER OF TIME It is a love letter to this struggle. ”

About the soundtrack of the Broken Social Scene, Finlin commented on the work with the band leader, Kevin Drew: “When I told him about the movie, he simply asked the group, ‘Are you inside?’ And they were. They devoted their time, their talent, and created something really special. Eddie. The emotional load they bring to the movie is something that fills me with pride. Honestly, I would love to hear more of it. ”

MATTER OF TIMEdebut on Thursday, 12, in Tribeca Film Festival; The opening session will also feature an intimate acoustic presentation of the singer of the Pearl Jam.

This article was originally published by Rolling Stone USA by Daniel Kreps on June 9, 2025, and can be checked here.

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