The photographic show presents the journey of patients with NMO, a rare and little -known disease that can lead to the irreversible loss of vision
Summary
Exposure to the Senate on optical neuromielite tries to make rare diseases and impacts aware, highlighting challenges such as early diagnosis and access to Sus treatment.
Between August 25 and September 5, the Federal Senate receives the exhibition “Optical neuromyelitis | You don’t see, but I feel”, an initiative of the Brazilian association of optical neuromyelitis and diseases of your spectrum (NMO Brazil). The show tries to sensitize society to a condition that is still known, but deeply affects the life of those who live with it: optical neuromielite (NMO).
The disease is a rare autoimmune condition that reaches the central nervous system and causes inflammation in optical nerves and spinal beloved. The symptoms range from loss of vision and from muscle weakness to paralysis and compromise of mobility in more serious phases. Early diagnosis is considered crucial to contain progression and guarantee a better quality of life for patients.
The exhibition brings portraits and reports of people with NMO, revealing not only clinical challenges, but also the emotional and social impact of the disease. In Brazil, one of the main obstacles faced by these patients is an unequal access to the treatment by the Unified Health System (Sus), which makes even more relevant actions such as this.
The initiative has the institutional support and sponsorship of AMgen Brasil, which strengthens its commitment to give visibility to rare diseases and expand access to innovative therapies.
Service:
Position: Ivandro Cunha Lima, Federal Senate – Brasilia (DF)
Period: from 25 August to 5 September
Further information: nmousinto.org.br
Source: Terra
Ben Stock is a lifestyle journalist and author at Gossipify. He writes about topics such as health, wellness, travel, food and home decor. He provides practical advice and inspiration to improve well-being, keeps readers up to date with latest lifestyle news and trends, known for his engaging writing style, in-depth analysis and unique perspectives.
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